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Hi, I'm Kira. I am not a Parent Partner but I volunteer for CPBF and help where I can. Together with Karen Bong I have tried to create this forum from the technical view point. If there are issues you are having or questions please let me know and I will do my best to try and solve them. I hope this becomes a useful space for idea sharing!💜
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This thread has all the posters authored and presented by parent partners and an NICU graduate & sibling at EPIQ 2025.
Please have a look through to see all the amazing work parent partners are doing across Canada and to learn about the experiences and perspectives of NICU families!
The PNG files have a preview image; please click on the file (not the preview image) for better readability.
The PDF files don't have a preview; please click on the file to view.
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See what NICUs across Canada are doing with regards to a reunion for graduate families (often called a "Preemie Picnic"). Spreadsheet will be updated as new information is gathered.
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Save the date!
The 2024 FI Care Conference will be in Glasgow Scotland, October 2 and 3, 2024.
Here is the Save the Date Flyer and the page where you can sign up to be notified when registration opens.
Further details to come. CPBF is enquiring about sponsorship to cover registration fees for NICU family members to attend the online portion. Stay tuned!
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A huge piece of our peer support program, the weekly Mom to Mom lunch, re-started this month at Sunnybrook! This group event is key to delivering peer and lactation support, connecting current NICU families with each other, and providing nutrition and a break to the moms (aunties, sisters, grandmas) who attend.
To get to this point we needed to return to normal on a few other fronts (e.g. returning to the minimal visitor restrictions we had pre-pandemic, Cuddler Program returning to being our standard of care, Milk and Cookies education sessions running successfully). We also needed to sort out logistics for paying for food, as our hospital accounting operations changed during the pandemic.
I'm thrilled to say parents are engaged and participating in these lunches! I'm also so proud to acknowledge the re-start of this program was led by our Breastfeeding Resource Nurse along with our NICU Peer Counsellor (graduat…
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I am so happy to be able to say that at Sunnybrook, we have returned to the family and visitor presence policy we had prior to COVID-19.
During the pandemic new restrictions of various kinds were put in place. We are now back to:
parents (or a baby's two family caregivers) decide who may visit their baby (no limit on number of visitors except for medical reasons - this aspect restored this month)
children under the age of 5 may be in the NICU baby's room (restored this month)
parent's NICU fobs open the doors to the NICU and to their baby's room (for a long time this was deactivated so they had to buzz in and be screened for COVID before they could enter the NICU).
Excluding young children and limiting the number of family and visitors who could be present at one time caused very difficult separation and…
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Many of our NICU families live far from the hospital, and many face financial challenges in being present to support their baby.
We offer several supports to help alleviate this.
Welcome bags include information about parking passes, that can reduce the cost of parking at the hospital compared to the regular daily rate.
Social workers give out discount parking day passes on an as-needed basis.
Our Parking Office facilitates the transfer of unused parking pass credits, from a NICU family who no longer needs them and wants to donate them, to another NICU family in need.
Our Transportation Support Program provides grocery or gas gift cards to offset the cost of travel to the NICU.
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Every family whose baby is expected to be in Sunnybrook's NICU for at least five days (officially designated a "long stay") receives a welcome bag.
This bag includes:
"Welcome to Sunnybrook NICU" orientation book,
NICU Orientation Checklist,
Parking pass options information sheet,
