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CPBF Parent-Partner Network (PPN)

CPBF has established a national network of parents who work or volunteer in NICUs across Canada, fostering collaboration and the exchange of information on quality improvement initiatives and projects.


This group serves as a valuable resource, enabling members to contribute effectively to their respective NICUs by sharing best practices and innovations.


Additionally, CPBF actively supports these parents in knowledge capacity building by providing education, participating and presenting at various professional conferences, meetings, and workshops across Canada, including Evidence-based Practice for Improving Quality (EPIQ), Family Integrated Care (FICare), and Canadian Association of Neonatal Nurses (CANN), enhancing the knowledge and practices within the NICU community.


CPBF advocates for the role of a Parent Partner to be on every NICU team at every hospital across Canada.

  • What is RSV?
    Respiratory syncytial virus, or RSV, is a virus that causes cold and flu-like illness. For most healthy adults, RSV might feel like a cold. But RSV in babies and young children can be more serious.
  • How common is RSV in babies?
    RSV is very common in babies and children. Almost all babies and children will have had an RSV infection by the time they are 2. RSV is most common in the fall and winter months.
  • How do babies get RSV?
    The RSV virus spreads through droplets produced by coughs and sneezes. The most common way we get sick from RSV is by touching our nose, eyes and mouth with germs on our hands. RSV can live on surfaces for many hours. Premature babies are especially at risk of RSV because they have trouble fighting infections.
  • Can I prevent my baby from getting RSV?
    Most babies and young children will get RSV sometime during the first two years of life. It is important to protect all babies, especially premature babies, from RSV as best we can during their first winter. Here are some ways you can help prevent your baby from getting RSV: Always wash your hands with soap and water before you touch your baby. Wash your hands after you blow your nose, sneeze, or cough. Do not smoke or let others smoke around your baby or in your home. Keep your baby away from anyone who is sick. If you are sick, do not kiss your baby. Keep your baby away from crowded places such as daycare centers, shopping malls, and large family gatherings. Ask your healthcare provider if your baby should get RSV prevention medicine
  • How sick can my baby get from RSV?
    RSV will cause a bad cold for most babies. Some babies will get very sick from RSV. Babies born very prematurely, with breathing problems, certain heart problems or other medical conditions, are at the highest risk of getting very sick. RSV can cause pneumonia and bronchiolitis, serious lung and airway complications. If this happens, most babies need to be admitted to the hospital, and some need oxygen or breathing help.
  • What are the signs and symptoms of RSV in babies?
    Some babies with RSV will only have cold symptoms like a runny nose. Other symptoms of RSV include: Fever Cough Problems with breathing (fast breathing or working hard to breathe) Whistling or wheezing noise when breathing Trouble feeding
  • What should I do if my baby gets sick with a cold?
    Always call your baby's healthcare provider if your baby seems sick, is not eating well, is irritable, and has a runny nose If your baby has a fever or a cough, go to the hospital If your baby looks blue, has difficulty breathing, or stops breathing, call 911

Director of PPN

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Karen Bong – Director of PPN

Our Parent Parners

Paige Bautz

Jim Pattison Children’s Hospital

Paige Bautz

Aruna Boodram

Sunnybrook HSC

Aruna Boodram

Erin Bruegger

IWK

Erin Bruegger

Concetta Del Bove

Sunnybrook HSC

Concetta Del Bove

Ashley Durance

Royal Columbian

Ashley Durance

Marion Fernandez

Family Council Co-Chair

Marion Fernandez

Kate Griffin

Kingston HSC

Kate Griffin

Meredith Harrison

TOH Extremely Low Gestational Age working group - The Ottawa Hospital

Meredith Harrison

Lucia Jakobs

CPBF FI Care

Lucia Jakobs

Pam Kai - Family Mentor

Alberta Children’s Hospital

Pam Kai - Family Mentor

Jenna Liesch

Surrey Memorial

Jenna Liesch

Christine Ly

NICU Gut Health QI Group - Stollery Children’s Hospital

Christine Ly

Beth McBarnett

Mount Sinai

Beth McBarnett

Adrienne McKnight

PACT Parent Advisor

Adrienne McKnight

Kristi Muralt

Victoria Island Health

Kristi Muralt

Rebecca Pearce

CHU St. Justine

Rebecca Pearce

Kieran Powers - Mount Sinai

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Kieran Powers - Mount Sinai

Heather Radford

QI Parent Partner - Sunnybrook HSC

Heather Radford

Delka Roberts - Parent Partner Coordinator - St Boniface Hospital, Winnipeg

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Delka Roberts - Parent Partner Coordinator - St Boniface Hospital, Winnipeg

Flavia Sant’Anna - EPIQ Brain Health Working Group

PAC Co-Chair - Mount Sinai

Flavia Sant’Anna - EPIQ Brain Health Working Group

Elaine Soo - BC Women's Hospital + Health Centre

Gut Health EPIQ Group - Health Sciences Centre Winnipeg

Elaine Soo - BC Women's Hospital + Health Centre

Kyle Stoesz - Gut Health EPIQ Group - Health Sciences Centre Winnipeg

Leading Our Parent Peer Group - Saint John Regional Hospital

Kyle Stoesz - Gut Health EPIQ Group - Health Sciences Centre Winnipeg

Jessica Vanderlaan

Patient Engagement

Jessica Vanderlaan

Julianne Walker

IWK Halifax

Julianne Walker

Tom Wiebe

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Tom Wiebe

Karen Beattie

McMaster Children’s Hospital

Karen Beattie

Rena Brito

QI Council Parent Partner - South Health Campus, Foothills

Rena Brito

Kendra Coates

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Kendra Coates

Suzanne Deliscar

St. Michael’s Hospital

Suzanne Deliscar

Shireen Fakria

Mount Sinai, PAC Co-Chair

Shireen Fakria

Jonathan Foster

CPTBN EPIQ Board

Jonathan Foster

Jennifer Hanrahan

Patient and Family-Centered Care Coordinator - Stollery Children’s Hospital

Jennifer Hanrahan

Julia Holt

PAC Co-Chair

Julia Holt

Kate Joslin

Kingston HSC

Kate Joslin

Priyanka Kumar

Montreal Children’s Hospital

Priyanka Kumar

Anthony Lucifero

Hospital Audit Committee - Montreal Children’s Hospital

Anthony Lucifero

Kelsey Mann

NICU Veteran Parent Partner - Winnipeg HSC

Kelsey Mann

Meghan McEvoy

NICU Care Club - Ottawa General, Queensway Carleton

Meghan McEvoy

Josh Meller

NICU Brain Health QI Group - Stollery Children’s Hospital

Josh Meller

Karen Netzel

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Karen Netzel

Michelle Peltier

BC Woman’s

Michelle Peltier

Nicole Quain

PFAC - Mount Sinai

Nicole Quain

Rosaleen Rinzler

Jewish General Hospital

Rosaleen Rinzler

Kaitlyn Saby

PACT Parent Advisor

Kaitlyn Saby

Lia Sharpe

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Lia Sharpe

Kezia Stoesz

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Kezia Stoesz

Dyllan Taylor

Saint John Regional Hospital

Dyllan Taylor

Rita Visconti

Markham Stouffville, Sick Kids Hospital

Rita Visconti

Leah Whitehead

Family Engagement Advisor

Leah Whitehead

Nicole Ward

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Nicole Ward
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CPBF strives to be sensitive and responsive and welcoming to everybody. If there is a misuse of language or terminology, please let us know in a professional and constructive manner.

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