We are a parent led, charitable organization providing education, support and advocacy for premature babies and their families. Approximately 30,000 babies are born prematurely every year in Canada. It is our goal to continue to build on our momentum with continuous development of peer support programs, helpful materials and resources for families and health care professionals, and investigating ways in which we can better the lives and experiences of premature babies and their families.
Our Vision
A brighter future for all premature babies and their families.
Our Mission
To empower families of premature babies every step of the way, through support and education.
Four Pillars of our work:
Support
Education
Research
Our History
Started in 2012, Canadian Premature Babies Foundation is the first national organization in Canada to support premature babies and their families.
We acknowledge the hard work and tenacity of our Founder, Katharina Staub, for bringing our organization from a thought to reality. With Katharina’s leadership, Canadian Premature Babies Foundation has developed partnerships across the world, all with the common goal of advocating for and providing support to premature babies and their families.
Our advocacy work has included government action to influence public policy affecting premature babies and their families – such as Employment Insurance and Parental Leave. We have also provided balanced information and responses to ethical issues and continue to do so in our work.
Where we are now and moving forward…
Confident parents mean well-adjusted and supported children. It is our intent that through consistent information, access to helpful resources, and peer support inside and outside the NICU, we are ensuring families of premature babies feel empowered and ready to care for their prematurely born child every step of the way.
It takes a village.
As our organization grows and more volunteers are added to our team, we will continue to strive to provide thoughtful and useful services, supports and information to not only the families, but to the health care providers who support our vulnerable babies through their earliest challenges.
We will continue to develop national and international relationships with other parent-led organizations, health care providers and their governing bodies, corporations, donors and other stakeholders.
Let’s work together to encourage and empower families with prematurely born children!
Charitable registration number 801837287RR0001
Board Of Directors
Scientific Advisory Committee
Family Advisory Committee
Family Ambassador Committee
Project Coordinators
Patricia Almeida
Preemie Chats
Mary-Jane Mikkelsen
Graduation Packages
