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Peer Support

Peer Support for NICU Families

We believe in the power of peer support.

Get mental health support from other parents of premature children! Join our peer networks today!

Drop-In Virtual Peer Group

Hosted by preemie parent and

certified Grief & Trauma Coach, Kieran Powers

Thursdays at 12 pm ET

(1:30pm NT, 1:00pm AT, 11:00am CT, 10:00am MT, 9:00am PT)

Join us in this virtual space as we connect, share NICU and preemie
parent experiences, and empower one another with support and knowledge.

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  • What is RSV?
    Respiratory syncytial virus, or RSV, is a virus that causes cold and flu-like illness. For most healthy adults, RSV might feel like a cold. But RSV in babies and young children can be more serious.
  • How common is RSV in babies?
    RSV is very common in babies and children. Almost all babies and children will have had an RSV infection by the time they are 2. RSV is most common in the fall and winter months.
  • How do babies get RSV?
    The RSV virus spreads through droplets produced by coughs and sneezes. The most common way we get sick from RSV is by touching our nose, eyes and mouth with germs on our hands. RSV can live on surfaces for many hours. Premature babies are especially at risk of RSV because they have trouble fighting infections.
  • Can I prevent my baby from getting RSV?
    Most babies and young children will get RSV sometime during the first two years of life. It is important to protect all babies, especially premature babies, from RSV as best we can during their first winter. Here are some ways you can help prevent your baby from getting RSV: Always wash your hands with soap and water before you touch your baby. Wash your hands after you blow your nose, sneeze, or cough. Do not smoke or let others smoke around your baby or in your home. Keep your baby away from anyone who is sick. If you are sick, do not kiss your baby. Keep your baby away from crowded places such as daycare centers, shopping malls, and large family gatherings. Ask your healthcare provider if your baby should get RSV prevention medicine
  • How sick can my baby get from RSV?
    RSV will cause a bad cold for most babies. Some babies will get very sick from RSV. Babies born very prematurely, with breathing problems, certain heart problems or other medical conditions, are at the highest risk of getting very sick. RSV can cause pneumonia and bronchiolitis, serious lung and airway complications. If this happens, most babies need to be admitted to the hospital, and some need oxygen or breathing help.
  • What are the signs and symptoms of RSV in babies?
    Some babies with RSV will only have cold symptoms like a runny nose. Other symptoms of RSV include: Fever Cough Problems with breathing (fast breathing or working hard to breathe) Whistling or wheezing noise when breathing Trouble feeding
  • What should I do if my baby gets sick with a cold?
    Always call your baby's healthcare provider if your baby seems sick, is not eating well, is irritable, and has a runny nose If your baby has a fever or a cough, go to the hospital If your baby looks blue, has difficulty breathing, or stops breathing, call 911

Join our Private Facebook Group:

Canadian Preemie Parent Support Network

Simply send a request to join. Share stories, concerns, resources in a comfortable online community with other parents like you. This group is facilitated.

Join us on Social Media!

Follow us on Facebook!

You'll find other preemie parents, supporters, educators, educational materials, activities,relevant news, and events.

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We are grateful to all the clinicians and caregivers who helped our families, however we recognize that being able to connect with someone who has a similar lived experience is incredibly important.

Since our inception we have collaborated with experienced parents, health care providers and hospitals, all sharing a common goal of training individuals to provide peer support and run parent groups in Canada’s hospitals and communities.

Community Groups

Parents of Preemie Association (POP) - Ottawa, ON

www.popottawa.org​

Preemie Parents of the Yukon (NWT & Nunavut welcome) YUKON

https://www.facebook.com/groups/2078018139106119/

​Preemie Parents of Waterloo-Wellington Region, ON

https://www.facebook.com/preemiepowwr

Moncton Preemie Power 

https://www.facebook.com/groups/403877546375922

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