About us

We are a parent led, charitable organization providing education, support and advocacy for premature babies and their families.

Approximately 30,000 babies are born prematurely every year in Canada.

We continue to build on our momentum with peer support programs, resources for families and health care professionals, and research leading to improved outcomes and experiences for babies and families.

Four Pillars of our work:



Awareness & Advocacy


Our History

Started in 2012, Canadian Premature Babies Foundation is the first national organization in Canada to support premature babies and their families.


We acknowledge the hard work and tenacity of our Founder, Katharina Staub, for bringing our organization from a thought to reality. With Katharina’s leadership, Canadian Premature Babies Foundation has developed partnerships across the world, all with the common goal of advocating for and providing support to premature babies and their families.


Our advocacy work has included government action to influence public policy affecting premature babies and their families – such as Employment Insurance and Parental Leave. We have also provided balanced information and responses to ethical issues and continue to do so in our work.

Where we are now and moving forward…


Confident parents mean well-adjusted and supported children. It is our intent that through consistent information, access to helpful resources, and peer support inside and outside the NICU, we are ensuring families of premature babies feel empowered and ready to care for their prematurely born child every step of the way. 

It takes a village.


As our organization grows and more volunteers are added to our team, we will continue to strive to provide thoughtful and useful services, supports and information to not only the families, but to the health care providers who support our vulnerable babies through their earliest challenges.


We will continue to develop national and international relationships with other parent-led organizations, health care providers and their governing bodies, corporations, donors and other stakeholders.


Let’s work together to encourage and empower families with prematurely born children! 

Charitable registration number 801837287RR0001


Meet our generous sponsors, supporters and partners. Let's go!

Our Team

Our team consists of parents of premature babies and neonatal health care professionals from across Canada. 

We are pleased to introduce you to our team.


Board Of Directors

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Scientific Advisory Committee

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Family Advisory Committee


Family Support Committee


Education Committee

Project Coordinators

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Patricia Almeida

Preemie Chats


Mary-Jane Mikkelsen

Graduation Package Program


Amrita Subramanian

Volunteer Coordinator


Click on the links below to check out our policies.